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Links to Helpful Resources

Links to Helpful Resources

 

Title Description Phone Number
Care Search Palliative care knowledge network. Ensuring everyone receiving or providing palliative care has access to trustworthy evidence-informed information to support person-centred decision-making and the transition to palliative care. (08) 7221 8233
Carer Gateway Carer Gateway is an Australian Government program providing free services and support for carers. 1800 422 737
CarerHelp Provides resources for carers in palliative care. (08) 7221 8233
Carers Victoria Resources for carers including some great workshops and other social events. 1800 514 845
COTA Victoria Council on the Ageing (COTA) Victoria is the leading not-for-profit organisation
representing the interests and rights of people aged 50+ in Victoria. For 70 years, we have led government, corporate and community thinking about the positive aspects of ageing.
(03) 9655 2100
Leukemia Foundation Information for Carers From adjusting to becoming a carer, to resources and everyday tips, we’ve
answered your questions about caring for a loved one.
1800 620 420
Link Health and Community Centre - Oakleigh, Clayton & Chadstone  Walking and grooming pet program
A range of health professions available, including physio, dentists, child, youth
and family services and counselling.
Hydro exercise
Social groups
Interpreters
1300 552 509
Local Libraries Library services: Home delivery of books, magazines, audiobooks, videos etc.
* This service is available for people in the area who are housebound or can’t get to the library.
* Books can be exchanged every 3-4 weeks. In ‘normal’ times, a volunteer will
deliver and collect the books, and quite possibly stay and have a chat, but at the moment (March 2022), books are left at the door.
* If you don’t have a library card, they will provide you with one.
 
Macmillan Cancer Support (UK) Cancer information and support resources (UK based)   
MND Association Support for Carers If your relative or friend has been diagnosed with MND or Kennedy’s disease,
supporting them may feel part of your relationship. However, health and social care services describe someone who provides unpaid care support as a 'carer'. This term can help you identify and access services, which offer direct support for you, as well as the person who has been diagnosed. 
0808 802 6262
National Institute on Aging (America) Providing Care and Comfort at the End of Life  
Peter MacCallum Cancer Centre Patient and Carer Support Services such as:
Support services
Interpreters
Auslan services
Family Violence support
Disabilty assistance
Accomodation options
Legal Services
Wig service
Child minding for medical appointments
Patient products- Slippers and sleepwear, underwear, headwear, kids activity bags
(03) 8559 5000
Very Special Kids How to support a carer 1800 888 875
Cancer Council - Talking to kids about cancer The sections on talking about advanced cancer and talking about death and dying start on Page 45.  13 11 20
Cancer.org (US) Helping Children When a Family Member Has Cancer: Dealing with a Parent's
Terminal Illness
 
Crossroads Hospice (US) Helping a Child When a Loved One Is Terminally Ill  
Headspace - Understanding Grief and Loss Supporting a Young Person through grief and loss. (03) 9027 0100
Hospice of Cincinnati (US) 8 guidelines for telling a child that a loved one is dying  
Kids and Grief Picture Books Beginnings and Endings with Lifetimes in Between by Robert Ingpen 
The Memory Tree by Britta Teckentrup
The Goodbye Book by Todd Parr 
I Miss You, A First Look At Death by Pat Thomas 
n/a
Macmillan Cancer Support (UK) Preparing a child for loss  
The Guardian News website How do you tell children their father is dead? And what happens next? Barbara
Want explains how she and her twins adjusted to being 'just the three of us' after her husband died four years ago
 
The Invisible String Picture Book (Read Aloud) - YouTube A wonderful story about how being apart from those you love doesn't mean you are all alone. When you love someone, you are always connected by your invisible strings. Helping children manage feelings and navigate difficult emotions. n/a
Virtual Hospice (Canada) When to Tell the Children: Preparing Children for the Death of Someone Close
to Them
 
Beyond Blue Information and support for anxiety, depression and suicide prevention for
everyone in Australia.
1300 22 4636
Homage - Ad Hoc care services Hire Quality Ad Hoc Care for the Elderly in Australia.Need care support
post-hospitalisation or while the main carer is away? Homage’s part-time support workers can help with activities of daily living at home from 1-hour onwards. We support care requests from both private clients and case managers.
1300 705 029
ASCO Cancer.Net (US) Understanding Grief and Loss within a cultural context  
Assure Programs Understanding grief and loss 1800 808 374
Cancer Council Understanding Grief A guide for family and friends when someone has died from cancer 13 11 20
Macmillan Cancer Support (UK) - Making a Memory Box  Making a Memory box. Making a box filled with special things can help your
children or other loved ones to remember times that you spent together.
 
Palliative Care Australia Understanding Grief (02) 6232 0700
Dreams2live4  Dreams2Live4 makes dreams come true for patients who are living with metastatic cancer (meaning any cancer which has spread), relapsed lymphoma, relapsed leukaemia and aggressive brain tumours. 02 8914 9997
Royal Flying Doctor Service Memory Lane Flights Supports people in end of life care to visit places that hold meaning for them.  
Whitehorse Community Services Council events and day trips for older carers and patients.  
Chinese Cancer & Chronic Illness Society of Victoria Links to different cultural groups that provide support services to end-of-life
patients and carers - for example the Chinese Cancer and Chronic Illness Society of Victoria
 
Maroondah Community Programs Social Inclusion & Wellbeing Program. Council run events and day trips for older
carers and patients.
 
U3A U3A connects Victorian seniors with their local community - forming lifelong
friendships, learning new skills, and enjoying retirement together. 
(03) 9670 3659
Cancer Council Victoria - Facing End of Life Caring for someone nearing the end of life. Providing practical, physical and
emotional support and after the death. 
03 9514 6100

Palliative Care ACT App

Apple App Store

Google Play Store

Palliative care ACT has an app with resources for carers and palliative patients.
It includes information about the dying process, how to support a palliative patient and even a card game to facilitate conversations about end of life planning decisions. Note some information is specific to ACT residents. 
 
COTA - Aged Care Navigator Trial The Aged Care Navigators Trial provides a free, independent and confidential
service to older people, their families and carers, on many things. See link for more information.
1300 268 228 
Legal Aid Victoria - Ringwood office Help with Executor services and paperwork. (03) 9259 5444
Maroondah Community Assist Help with Executor services and paperwork. Confidential, Free, Independent and Impartial Advice.  (03) 9725 7920
Cancer Council Victoria Provide financial assistance and advice.
Transport and financial assistance for transport
Income assistance ( terms apply)
Indigenous support
Nurse councillors
03 9514 6100
Services Australia Essential Medical Equipment payment, assistance with heating &/or cooling to
run essential equipment.

 

Otago Community Hospice Podcast (NZ)

A podcast series for carers