What Caring May Involve
Caring and supporting someone is both satisfying and hard. There are so many things to think about.
People need to be aware that EPC is a specialist palliative care organisation. The person we are caring for will guide us in the wording of our conversations.
Please provide EPC with the names of the key people involved in care at home. We can only discuss care with authorised people.
Plan ahead where you can:
- Know where you are going, appointment locations, parking availability, knowing how to locate toilets. Talk to someone when the appointment is being made. Hospital websites have useful information.
- If you need a wheelchair at the appointment ask for one from the clinic or hospital.
- Don’t be afraid to write down a list of questions
- Be ready to ask for and then accept help.
As an educator and volunteer with EPC, there was never any question in Margaret’s mind, that she would share her journey of Motor Neurone Disease as a teaching tool for others.
As a result of her work, EPC nominated her for the Victorian Senior of the Year Award.
She won that in 2019.
In this video, Margaret shares her experience as a client and what she wants us to know as we interact with others in a similar situation. She teaches us how we can care for our clients well.
EPC will continue to help Margaret teach and support our clients and the staff, volunteers and carers who work with them.
We do this in her honour.
Carer Pathways - CarerHelp has 5 different paths with information and videos covering the different stages of care.
At any point EPC can assist, whether this be through Family Support, Nursing, Allied Health or our trained volunteers. Please call the number provided in your folder.
- Carer Gateway provides online or phone advice to find local support services. By calling 1800 422 737 Monday to Friday between 8am and 5pm, Carer Gateway staff will talk through what you need and help you to find services and support. If you want to talk with someone in your language, phone the Translating and Interpreting Service on 131 450.
- Care Search is an Australian palliative care information site.
- Palliative Care Australia - links to a number of resources
- Cancer Council Victoria Caring for someone with cancer
- Supporting a person who needs palliative care: a guide for family & friends (3rd ed.2017)
- Understanding palliative care – Cancer Council 2021